Originally Posted by
Amanda
okay...
prior to hospital - NO signs of weakness, he was making his breakfast and lunch, walking around the house, helping with dishes, despite having a broken shoulder; no breathing problems, just upset about swollen infected legs.
Thurs-
We kept trying to get oxygen to get him out of there, since that was his wish yesterday. He wanted to leave.
We believe he is weaker and condition has deteriorated because of being in the hospital and letting him get dehydrated, giving him crappy cold food (so not eating as much), nobody get him up for 3 days to walk around, etc. (also for food, he needs position in bed adjusted so he can reach the tray, but nobody does this for him, they come in an hour later and food is then cold and he doesn't feel like eating it).
So, mom visited him yesterday, since now out of isolation for fake covid BS; gave him more water and brought him bananas.
Last night, I visited and brought him some nutrients for his heart: 400 mg magnesium, D-Ribose, 2 Hawthorn berry, 400 mg CoQ10, Vit K2. I got him to drink more water. Talked with him about how his health has deteriorated from being in the hospital (never needed oxygen before, wasn't weak before, etc.) and that they were now using it against him as a reason for why he could NOT leave the hospital. We talked about the strategy of my mother continuing to try to get prescription for oxygen from primary care doctor and get a wheelchair since they would not give him one if he left against medical orders. Also talked about how we have to work on building up his strength and health by giving him nutrients to get him back to where he was before he arrived at the hospital. He seemed on board with all of this. Told him we would be back 2 times on Fri to keep giving him the supplements. Also told him they said he had afib on Wed night (never had before, could this be due to him getting so dehydrated that electrolytes were off?), but we checked with Dr. Sherry Rogers' book "Is Your Cardiologist Killing You?" and she said you can cure Afib with magnesium (I think she said 600 mg 2x/day)--I told him all about Dr. Rogers and what she said.
also when I arrived, food sitting there since 6:10 but father not able to eat it because nobody came to adjust his position in the bed so he could reach the tray. I arrived at 7pm, then the bitchy white nurses came in and adjusted his bed. My father said, they only came in because they saw you were here and wanted to make it look good. Finally, at end of visit, we got a nice black tech, very friendly, so I told him everything that was going on. How they didn't give him any water for 2 days and he got dehydrated, was feeling spatially disoriented on Wed night b/c of dehydration, which went away with a drink of water. Asked him to please make sure nobody takes water away and keep it within his reach on the tray. also told him How father was here for 3 days , nobody walked him around, so he's getting weaker, and they are saying now he's too weak to leave (using weakness against him). Said at home, he was not bed ridden and was up and about despite broken shoulder. Marquis (the guy) totally got it, said he would get him up and help him walk and take him to toilet (nobody even took him to the freaking toilet for 3 days!!). later, got call from nurse Lisa Kruger, who worked with Marquis to get him up, standing and on toilet. She said he was unsteady and that they got him in a chair so he could sit for an hour. So finally thought we were making progress (nurse also said she would put in order for physical therapy). Also noticed when I was there, "heparin" on the screen, and I was to self - WTF is that about? (prior to hospital, he was only on thyroid meds and gabapentin at first for neuropathy, which went away, so then only for sleep) So when I left, I thought we were on the right track. (again, as of yesterday, he wanted to get out of there, and was telling us to get prescription for oxygen).
Friday morning-
Mom just talked with him, now all of the sudden he is telling us they have time to "squeeze him in" for a procedure (I guess having to do with the valve), which makes no sense to have this now when his condition has deteriorated for 3 days of being there (he would have a better chance of surviving if it was done when he was in the condition he was in prior to the hospitalization).
Now, my father is seemingly resigned to fate (yet, yesterday, Wed, Tues, he wanted OUT--yesterday, Thurs morning he told me he told them "no more f'ing tests, I want to go home, I'm done with this crap, I'm not having any tests so get me my breakfast." He just told my mother (fri am) he realizes he's weaker now than few years ago (he did not feel that way prior to hospital), he's going to take his chances with the procedure (aware he might not make it,willing to take chances), so he can spend his last years helping his family (IMO- sounds like they were manipulating him, working this angle, "hey if you have this procedure, you will be healthier and can help your wife, etc." -- meanwhile, all last year, he was healthy enough to manage the renovation of an inherited house in CT, and have a friend drive him up there almost every weekend, so he could work on it--at 83 he was actually doing work on a house). Our worry is that they are going to kill him, especially since he's in dramatically worse shape than he was in prior to going to the hospital.
My mother is extremely upset that he has made this decision on his own without talking with her. agreement prior to hospital was that they would NEVER make any major decision without first consulting each other. My mother was upset that nobody (doctor) called to inform her of any of this. This feels like they browbeat an old man into doing what they want.
Also now worried about my mother--stress of this is killing her (82 y. o) her BP was through the roof last night.
Also, we went through all of this in 2019--they wanted to do procedure for valve. Had him at hospital in PHilly. After 4 days of being there (tons of tests to make $$$$ and rack up the bill) my father got sick of it and wanted to come home. He was going to do Linus pauling protocol, diet, high dose K2 based on info I got online and here. Then for first few weeks when home, he was into it. But later started not doing protocol, lost motivation because he felt fine. My mother had to constantly nag and it caused fights. I also nagged and got into fights.
So that's that. I was feeling hopeful last night that we could get him out of this, if we continued to get nutrients into him and get him back to pre-hospitalization status and then if we could get him home and get him to finally follow nutrient and diet protocols. Now not feeling so hopeful and thinking they are going to kill him today while making some $$$$ for themselves.
Also, there are no words for the horrible "care" he's gotten-- you could probably get better care in a 3rd world country.