
Originally Posted by
Amanda
OMG!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I can't stand these people!!!!
I'm so freaking tired of this nightmare.
My mother and I are pretty much convinced that the sudden need for oxygen and the low BP is because of the dehydration (not getting enough water while on lasix).
His entire life, his BP was ALWAY:
110-120
__________
70-80
Now suddenly, by the 2nd night in hospital hell hole, he has low BP (97/51 <---that was latest reading tonight, but apparently was lower than that earlier in the week when everything suddenly went wrong)
And he NEVER had breathing problems, no huffing/puffing, always parked far from stores and walked in, no shortness of breath and no need for oxygen.
But by 2nd night with them (they gave him NO water while on Lasix; plus he admits at home he was not drinking as much b/c of swollen legs and thought it was counter-intuitive to drink water), he suddenly has very low blood pressure and needs oxygen.
****
So, I was there tonight and he was basically choking on his tea b/c of his position in the bed (on-going problem-- he needs them to lower the bed, pull the sheet and his body, so head is closer to top of bed, then pop the bed back up, so he is seated more upright). I told the nurse, nobody came, so I couldn't really do all my supplements b/c I didn't want him choking on the pills I was sneaking in,
Then, nurse comes in and orients another nurse to my father's condition. There is NO acknowledgement that he NEVER had breathing problems/needed oxygen or had low BP until he got there. They are now saying he is in "respiratory failure" (I guess b/c of need for oxygen) (again, I'm convinced it's b/c of the dehydration w/Lasix and we are struggling to get him to drink more). He also now has "congestive heart failure" label and are telling him that if he doesn't have the procedure (valve, not sure name of actual procedure) he will need palliative care, which makes no sense--he didn't look like he was freaking dying until he got under their care. Also now as the Afib label (never had that before he got there, probably magnesium depleted from lasix and dehydration). He was maybe going to have the valve done in 2019 but the hospital dragged it out (tests, tests, tests to extend the stay and rack up the $$$$$$$$$$$$$$) and after 4 days, my father was sick of it and wanted to go home. He never rescheduled because he felt FINE (no chest pain, nothing). The only procedure he wanted to get done was his eyes for cataracts.
Also, no mention of dehydration on his chart or that he had those 2 episodes of psychological distress (tues and Wed night), with Wed night's bizarre symptom being alleviated by drinking a glass of water. (also, ever since he got out of the BS isolation for the "suspected covid case" BS, we have been pushing the water and he's had calm nights (no psychologist distress) ever since.
Then the nurse says "he's been eating well"--Well that's total BS!!! He hasn't been eating b/c they wait about an hour before they adjust his bed so he's upright, so his food is then cold and he doesn't eat. So, I corrected the nurse (she did NOT like that) and said we've been bringing in Boosts and fruit/bananas b/c he's not eating his food.
Also, the nurse said she wants him to use his own muscles to shimmy himself up in the bed, but the problem is that he has a broken left shoulder which is still not fully healed, so only one good arm to push off with.
Nurse was pushing the procedure "why don't you want to have it done now?" These people truly do NOT get that he was fine until he got there (other than, yeah, there's a valve issue, and artery clogging, for which he was supposed to be doing high dose K2 and Linus Pauling protocol). He was NOT weak and bed-ridden with low BP and needing oxygen until he got under their "care"'
SO, that's that- a never ending hell show.
Now supposedly, he's going to get out tomorrow (I'll believe it when it happens--I don't trust these people, they are a bunch of liars)
On positive note, my mother talked with a doctor who is the patient advocate, and she seemed to understand when my mother said that they wanted to get him home and get his strength back before he had any kind of procedure.
Also, my mother is thinking about setting up a consult with Dr. Rogers ("Is Your Cardiologist Killing You" book), to see if she can help them get out of this mess.